Get me out of Holland
Thursday, September 1, 2011
Little Red Dress
Now I know why I was cranky. I can forge ahead, full steam and fail to acknowledge that life is hard, it's complicated and certainly not fair, but the emotions I stuff are going to creep up on me when I least expect it. There is one thing that little girl predicted right, I have fallen in love. Maybe not with the man and career of my dreams and 2 perfect, squeaky clean children as I had imagined, but with this crazy, unpredictable, roller coaster ride I call my life. I just need to slow down and and enjoy the victories, mourn the losses and just BREATH.
Tuesday, May 10, 2011
Here I go...
When we (and yes I mean we as a family, as it's all consuming) were first diagnosed with Rett Syndrome we were given this little story about going to Holland:
WELCOME TO HOLLAND
by
Emily Perl Kingsley.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
I'm sure this will be a journey and thanks for coming along for the ride.